What’s wrong with you again?

In general, I try not to talk about my Hashimoto’s to most people. I don’t really enjoy the question, “What’s wrong with you?” Yeah, people need to learn a bit of tact.

When talking about my health to others, I mentally take a quick assessment of the situation and decide if this person really wants to know or is just being polite. I’ve learned most people really don’t want to know the real answer because I see a glazed over look to their eyes once I start explaining.

What's wrong with you again? Living with Hashimoto's

So, my usual reply is “a thyroid disorder.” Most people stop there. Phew.

Then you have the few that ask more questions and really want to know what it is and how you are feeling. And I struggle with how to answer.

For the most part a thyroid disorder is accurate, but not really. It’s only part of the problem. Hashimoto’s is an immune system disorder, your body is producing antibodies that attack your thyroid.

Again, that really only describes a minor part of the illness. It doesn’t hit on how hard it is to get things done during the day because you are so tired. Or how you wake up and some part of your body always hurts. Or the weight gain that just keeps creeping up. Or how one day food agrees with you or the next day your tummy protests everything you eat.

It doesn’t describe the panic attacks that come out of no where due to a swing of your thyroid to a hyper state. It doesn’t explain why you wake up exhausted but yet you can’t fall asleep at night. And it really doesn’t mention how difficult it makes it to stay on task during the day.

Hashimoto’s is a person that never knows if what they feel is their new normal. A person that like me, probably spends a lot of time online trying to figure out how to help themselves feel better. A person trying to find the right balance of diet, exercise and supplements. (With out taking a mortgage out on the house to pay for it all!)

That’s really what Hashimoto’s is… a disorder that pretty much effects your entire life when it is not under control.

I have no desire to say those things to make someone feel bad for me but I want people to know that while some people may look ‘not sick’ there is so much more there. There is a person fighting to get to ‘normal’ and most often times don’t even have the help of a doctor that really understands how to treat Hashimoto’s.

You can do anything you want to ‘fix’ your thyroid, but unless you fix the underlying problem of your immune system, you are not doing yourself any favors.

I’m thankful to have my hashi’s under control right now. I know that it is a delicate balance I’ll always have to watch and maintain. But, for now, I’m happy to feel good and be moving forward.

 

How do you deal with talking about your health to others? 


*For the record, my thoughts and advice are only my experiences or what others have allowed me to share. We don’t claim to diagnose, treat or cure.*

Comments

  1. Karrie says

    LOVED this post!..I couldn’t have said it any better!!..Exactly how I feel about what I am going through with the candida!!..It’s nice to have people out there who really do understand..Thanks for posting this! :)

  2. Heather Hurth says

    Great post and so true. I was wondering how you got yours under control? Was it naturally or medicine or both?

    • Jessica says

      Thank you! I’m currently just using diet and supplements. My thyroid numbers, other than TPO (the antibodies) are all in range so I didn’t feel the need to do meds. I know that can change and will plan accordingly, if I need to. I’m hoping not to need it though. :)

      • Heather Hurth says

        Was it any special diet? And what supplements? I am going through the same disorder and symptoms and would love relief without taking meds :)

        • Jessica says

          A lot of things have helped me along the way…two steps forward, one step back at times. The first thing I did was go gluten free and I have stuck with that. I also had allergy testing done so I could eliminate anything that was causing me inflammation. Then I decided to try the Trim Healthy Mama diet (There are some posts here about it) and that has helped me a ton because I finally kicked the sugar habit! I am also losing weight! (http://simplyhealthyhome.com/trim-healthy-mama/) I know a lot of people with hashi’s do well with the paelo/autoimmune diet.

          As far as supplements, I make sure I eat probiotic rich foods and drinks daily to help heal the gut. On a daily basis I use selenium, D3, Zija and cell salts. The rest I take according to my symptoms. (http://simplyhealthyhome.com/the-ever-evolving-vitamin-routine/)

          I’m currently reviewing a book about Hashi’s. (http://www.thyroidlifestyle.com/#!buy-the-book/c7ke ) It is very promising so far, about finding the root cause of your hashimoto’s (That is my affiliate code) I’m hoping to finish the book this week and get a post up next week.

          I hope that helps you a bit, let me know if I can answer any more questions. :)

  3. Aleta says

    I know this blog will help many people. God made food to heal and to keep healthy. Man’s ways of processing God’s food can bring disease and early death. Thank you for being so honest!

  4. says

    Love this post. I have friends with Hashimoto’s and know it’s a challenge. One of my friends went into remission after completely changing her diet. Thanks for a great post.

    • Jessica says

      That is amazing! I was hoping diet changes would be enough for me….but not quite! But, I am going in the right direction. Thanks for stopping by. 😉

  5. Annette Gagliardi says

    I know what you are going through as I have lived most of my adult life with IBS. I look pretty normal, but have to constantly watch what I eat, never know if today will be a good day or a bad one; have pain – alot! and cannot eat lactose or gluten. At least I have gained some answers by seeing a nutritionist for two years. Unfortunately she moved to another city, and I just don’t have the time or money to find a new one, so am trying really hard to keep up the good habits she helped me form.
    Still, any little stressor or slip up is an episode of pain or stomach disturbance.
    I’m glad to know there are other folks dealing with these same issues – yes. misery does love company.
    Annette

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